Welcome to the EDCF Quality of Life Fund
(making a difference to peoples' lives)
Registered Charity No. 1119957
This site is still under construction- Please bear with us!! A big 'thank you' to everyone who kindly supported our 'Indian Summer Evening Boat Cruise' up the River Exe on Saturday 6th September 2008. With the proceeds from the raffle, you managed to help raise just over £1,500 - that's fantastic. Thank you so much. A fantastic evening - a lovely boat trip on Stuart Lines Pride of Exmouth, music from the live band 'The Embezzlers', disco music from DJ Paul King, and scrumptious BBQ food from Lester Newman - super!
About the Charity.......
The Quality of Life Fund has been set up by a group of parents, all of whom have
children with the life threatening disease Cystic Fibrosis. The Fund has been created to help people with Cystic Fibrosis who live in the
We need continual fundraising to ensure that money is available to help take the burden out of living with CF on a daily basis.
Do you think you could help us?
A competition was held where all patients, siblings and friends were asked to design a logo for the Quality of Life Fund. At our official launch of the Charity in July 2007 at The Devoncourt Hotel, Exmouth, members of the CF Team at the RD&E, Sarah Elworthy, Dr Nick Withers and Dr Simon Robertson chose the following entry.
Our official logo has now evolved form this and will be on all correspondence, t-shirts etc.
The EDCF Quality of Life Fund is not in competition with the CF Trust for funding, but is aiming to work alongside the CF Trust and give half of our annual fundraising monies to the Trust. We will aim to produce literature and leaflets with both the CF logo and our own.
Philosophically we are trying to make a bridge between the medical model of disability and the social model of disability.
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